The Return of an Allergic Foodie

How difficult can it be to write a blog post once a week? After all, I LOVE to write. I enjoy helping others with food allergies and celiac disease. I don’t mind sharing embarrassing details about my life with complete strangers.

So why haven’t I written anything these past weeks . . .  uh, months. I’d like to tell you I found a cure to my food woes and have been travelling around the world teaching others how they, too, can cure their leaky gut. I’d like to tell you I discovered a magic pill to make my and my son’s celiac disease disappear. I’d like to tell you I’ve been out promoting a book that remedies food allergies within weeks.

Of course, none of these things are true. The truth is I haven’t felt like focusing on my health issues.

I got SICK of being SICK.

When I was first diagnosed with multiple food allergies, I was told I could stop my leaky gut by eliminating offending foods. Once my gut was healed, I could slowly re-introduce those foods.

Didn’t happen. I am STILL allergic to soy, dairy, corn, capers, asparagus, vanilla, nutmeg. I know this because every so often some waiter or a well-meaning friend poisons me with one of these foods.

I recently began Weight Watchers. Yes, even though I cannot eat anything, I am fat. I sit in those meetings listening to the leader say how I can eat ANYTHING if I just keep track of those points. Pizza. Cake. Cookies. Nothing is off limits.

Uh, she hasn’t met anyone with severe food allergies or celiac disease or eosinophilic esophagitis, has she?

Having so many food restrictions as well as a broken metabolism just doesn’t seem fair. At least if I have to eat fish without butter sauce, or ribs without barbecue sauce, or rice noodles without teriyaki sauce, let me look good in a bathing suit!

In addition to getting sick of being sick, I also started a pity party.

Without making any sort of formal decision, I took a break from blogging. Rather than read the latest allergy studies, I went to the golf range. I stopped writing and began a new boutique business. I read fiction instead of allergy-free cookbooks. I helped a foster care mom with her foster kids and took over my elderly mother’s finances.

Doing all these things rejuvenated me. I may have a lousy autoimmune system, but I can still swing a golf club. I can build an entire business from the ground floor. I can make a difference in other people’s lives.

What I discovered while taking a break is this: My illness is a part of me, but it does not define me.

Though I hadn’t written anything new in months, people continued to read my old posts and comment. They emailed me their food allergy stories. They told me I helped them.

And this is why I am returning to blogging–to help. In return, you always help me.

I’d love to hear how your food restrictions don’t hold you back from living life to the fullest.

The Return of an Allergic Foodie” first appeared at Adventures of an Allergic Foodie

Food Allergies and Vegetable Oil: What You Need to Know

Near our home in Colorado Springs is a Mexican restaurant called Carlos Miguel’s that people rave about. So last Friday evening, when the streets were icy and my husband and I didn’t want to venture too far from home, I called the restaurant to discuss my food restrictions.

“What type of vegetable oil do you cook with?” I asked the man who answered the phone.

“Vegetable.”

“What type?  Soy? Corn? Canola?” I asked.

“Just vegetable.” He seemed a little perturbed.

I told the man I couldn’t eat at his restaurant without knowing exactly what was in the vegetable oil because I was allergic to soy and corn. He didn’t offer to check the ingredients label so I said goodbye.

Unfortunately, this isn’t the first time a restaurant couldn’t tell me what was in their cooking oil. And I’m sure it won’t be the last.  How absurd it is for restaurants not to know what they are serving their guests!

 

 

I also have a hard time with processed foods containing soy and corn. In the United States, corn isn’t one of the top eight allergens required by law to be identified on labeling.  While soy is one of the top eight, the FDA exempts soybean oil and soy lecithin from being labeled.  The FDA and medical experts, such as Dr. Scott H. Sicherer, MD, author of Food Allergies: A Complete Guide for Eating When Your Life Depends On It ( Johns Hopkins University Press, 2013), say most soy oil is highly refined so there is little proteins left to trigger an allergic reaction. Cold pressed and expeller pressed soybean oil are not highly refined and may contain soy proteins. The experts also say soy lecithin, a derivative of soy used as a nonstick agent in baking, has minimal proteins and those with a soy allergy need not worry.

My body does not agree with these experts. I’ve learned the hard way that soy oil, soy lecithin and corn oil  will all cause a severe reaction, including eosinophilic esophagitis. Blend them together–use soy/corn oil in my salad dressing and spray the grill with cooking spray containing soy lecithin–and I’ll be in really bad shape.  Talking with the other soy-allergic folks at food allergy conferences and through social media, I know I am not alone. Of course,  if you react to soy (so far 15 allergenic proteins have been found in soy) but can tolerate soy oil and/or soy lecithin, I’m happy for you! And a bit jealous! But do watch and discuss any changes in your health with your doctor.

Food Allergies and Vegetable Oil

Soy oil, or a blend of oils including soy oil, is used in restaurants because it’s inexpensive. Soybean meal and vegetable oil consume around 85% of the world’s soybean crop. By the way, the soybean is not a vegetable–soybean is a legume–but soy oil is still  referred to as vegetable oil.  Other plant-based oils include:

  • Canola (rapeseed)
  • Coconut
  • Corn
  • Cottonseed
  • Flaxseed
  • Olive
  • Palm
  • Peanut (a legume, not a nut)
  • Safflower
  • Sunflower

Unless the label says the oil is 100 percent, it may a blend of other oils. Read my post The Olive Oil Controversy. People can be allergic to any of these plant-based oils.

So here’s what I do to avoid an allergic reaction because of a vegetable oil mishap:

  • I read the ingredients labels of all oils before I buy them, and I stick to companies I trust. For a cooking spray, I use Winona Pure which does not contain soy lecithin.
  • I avoid all restaurants that cook only with soy oil and offer no other options (even if I’m ordering a food that doesn’t require oil–it’s just too risky). If they cannot identify what is in their  “vegetable oil,” I leave. In my experience, most Mexican restaurants and many Asian restaurants use soybean oil.
  • If it’s a questionable restaurant, I ask if the olive oil or other oil is 100 percent. This doesn’t usually go over well, but it’s been a lifesaver on several occasions.
  • I read allergen menus with a magnifying glass. Because of the FDA exemption for soybean oil and soy  lecithin, restaurants do not have to list them under “soy allergy.” Some allergen menus note this exemption with an asterisk, but not all do.
  • I ask a lot of questions before I order. What oil do you use to cook with? Does your vegetable oil contain soy? Do any other foods contain soy lecithin? Do you use cooking spray?
  • If possible, I call the chef in advance and discuss my dietary needs. I have celiac disease and allergies to dairy, eggs and corn, but I always stress the soy allergy because it’s the one that gets missed by waitstaff the most. Untrained waitstaff think tofu and soy sauce.
  • When I make reservations on OpenTable, which I do a lot, I note I have a soy allergy including soy oil and soy lecithin. I also check out what people say on Urban Spoon and Food Allergy/Celiac Disease apps.
  • When I travel, I try to stick to chain restaurants that never use soy oil (these are usually higher-end chains).
  • When eating out in my hometown, I’m a regular at restaurants that don’t use any soy at all. I let them know how grateful I am to have a safe place to eat.

Food Allergies and Vegetable Oil: What You Need to Know first appeared at Adventures of an Allergic Foodie.

Musings and Morsels 11-07-14

What a week! I spoke during the online Food Allergy Wellness Summit on a topic close to my heart: Living with food restrictions in college. As a nonfiction writer, I love to research and I read everything available to prepare for this interview. I have enough material to write a book! Well, at least a few blog posts.

I’d like to thank the National Foundation for Celiac Awareness and Food Allergy Research and Education for providing PDFs of their college-related handouts. Also, my appreciation to Well Amy, Surf Sweets, and Carrie S. Forbes, author of The Everything Gluten Free College Cookbook, for generously donating giveaways for those who signed up to follow this blog. (A little bribery never hurts. Wink, wink.)  Lastly, kudos to Crystal Sabalaske of Cluttershrink for organizing this valuable summit to help families with food allergies and for including me with such an impressive list of speakers.

Musings and Morsels 11-07-14

Last night I grabbed a glass of wine and a Daiya pizza–by the way, the crust has been greatly improved!–and listened to NFCA’s webinar on Gluten-Free Labeling with Tricia Thompson, RD. She’s the dietitian behind Gluten Free Watchdog, which if you aren’t following you should be! I learned so much about the FDA’s gluten-free labeling rules and I’m going back today to re-listen. It’s a lot to digest (pun intended)!

Good News: NFCA will be providing the webinar on their website. so you can listen, too. Check here later today.

On a sad note, this week I also learned a nonprofit task force I’ve co-chaired with a good friend would be ending. For 12 years my friend and I provided support to high-risk pregnant mothers on bed rest in local hospitals. We’d both been on bed rest during our pregnancies, and I delivered a baby 12 weeks early. We were the substitute families for these women whose families weren’t always available (we live in a military community). It’s hard to have the door close on something we believed in so much.

But as the saying goes–when one door closes, another opens. I truly believe helping others with celiac disease, food allergies and EoE is my new calling. This blog is just the start. If you have ideas for how I can do more to help you, please don’t hesitate to contact me!

Okay, enough musings–on to a few morsels!

As I’ve mentioned more than a few times here, I react to soy worse than any of my other allergens. So when I saw Soy Allergy Survivor’s helpful one-page soy list I immediately printed it. Because I have so many allergies including corn and dairy which can hide in many, many foods, I always appreciate guides like this one.

Musings and Morsels 11-07-14

Speaking of hidden allergens and labeling, which seems to be a theme this week, a new FDA consumer report, Finding Food Allergens Where They Shouldn’t Be, says the FDA is working to reduce undeclared allergens on labels by:  researching the causes of these errors; working with industry on best practices; and developing new ways to test for the presence of allergens. From September 2009 to September 2012, about one-third of foods reported to FDA as serious health risks involved undisclosed allergens. This is frightening, to say the least. You can help the FDA by reporting  food-allergic reactions to the FDA consumer complaint coordinator in your district. 

I’ll end with a little gossip. Who doesn’t like gossip? A little bird told me that the Food Allergy Bloggers Conference would be held in a different state than Nevada next year. Turns out it’s true! Pop on over to their Facebook page to learn more. If you aren’t familiar with FABlogCon, it’s a wonderful conference and opportunity to connect with the food allergy community and learn from experts. It’s for everyone–not just bloggers.  I, for one, am pretty excited about a new venue in a new state.  Come to think of it Colorado would be an excellent choice . . . hint, hint.

Musings and Morsels 11-07-14 first appeared at Adventures of an Allergic Foodie.